Boy, don’t I wish the book I am writing was finished right about now. The timing is PERFECT! The book is my memoir as a wife to a man diagnosed with ALS at the age of 51. With 3 children, a large house, husband in an upwardly mobile white-collar job, our lives instantly screeched to a halt as he began to have fasciculations in his arms and legs and was crudely diagnosed with ALS.
Oh… and did I mention he specifically waited until my birthday to break the news??? Happy Birthday to me… Geesh… speak about putting a damper on the party.
I have been working on this book for about 5 years. A few months ago I tossed the entire thing into the fireplace and lit a match… with no back up! Really… I did! I woke the very next day and started all over again. Completion is anticipated in about 8 weeks… where it will then most likely sit in a publisher’s slush pile for 6 months or so… if I’m lucky.
Anyway… after dealing with the ALS Association for 8 years as my husband plodded through the system I have to admit I am beyond THRILLED to see this #alsicebucketchallenge go viral. Not only do I get a kick out of watching friends and family SHRIEK and FREEZE… but I know the awareness factor is HUGE!!! People who never heard of ALS before are now donating to the cause. They might not fully understand the illness, or how it affects the entire family… but they are beginning to ask questions.
It’s about time this devastating disease was brought out of hiding and got recognition. I am not saying that Cancer, Parkinson’s, MS and more don’t deserve the limelight… I’m just saying I’m thrilled to know ALS is now right up there with them, no longer considered a second class citizen or a poor relation.
CHEERS to the person who started this whole challenge! I applaud you whoever you are. This is a genius idea… simply GENIUS!!
I will continue to post every challenge I receive on my Facebook page… and send a private thank you to all who participate. Keep ’em coming… and don’t forget to DONATE!!!
Here’s the link… http://www.alsa.org
For those of you with questions… don’t be shy. Drop me a line and I will be happy to answer them to the best of my ability… or direct you to a person who can. No question is too stupid… except the one not asked.